I have been making a necklace for Phoebe. It is made up of "courage
beads" and many of the children here have similar ones. Each tiny glass
bead represents a step taken towards recovery. The red beads represent
all of the pokes and intravenous lines that Phoebe has been given, she has over
200 red beads on her necklace. Each white bead symbolizes a treatment
of chemotherapy, the black are for antibiotics, blue are for days spent
in the hospital, there is a bead for the ICU, and one for bone marrow
aspirations and lumbar punctures. Each bead tells a story.
Although
Phoebe is too young to understand what the beads mean or even why she
is at the hospital, we have decided to make her a necklace because one
day in the future we will have to tell her this story. The necklace is a
symbol of her strength and courage, and of all that we have gone through
as a family.
Today we will add five beads to her necklace: two for
her daily injections, one for chemotherapy, one for the catheter that
she had inserted to protect her skin from the chemo, and
one for being brave because today she will receive her 6th treatment of
high dose methotrexate, a chemotherapy that runs through her body over a
24 hour period and causes mouth sores, mucositis, and terrible nausea.
I look forward to the day when we can sit down with Phoebe and Mae
and look at the necklace and tell them the story of Phoebe's journey to
recovery. Perhaps Phoebe will also want to visit the oncology ward
to proudly display how her necklace will easily stretch from one end of the long hallway to the other.
Beautiful. Brave Phoebe.
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