On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, April 21, 2011

Sweet dreams

As I write this, Phoebe is fast asleep in her own little bed.  This is her first time sleeping in her crib and I think she is going to have a very comfortable sleep, full of wonderful dreams.  We have so much to look forward to tomorrow: waking up under the same roof, having breakfast together, taking a walk in the sunshine, deciding what to have for dinner, watching Mae and Phoebe play, so many good things. 
Apart from a few visits to the hospital for some blood work, final tests, a bone marrow aspiration and a lumbar puncture, Phoebe will be at home until we leave for Toronto on the 3rd of May.  We have had to learn how to work her feeding pump, and also how to give a needle.  Because although she is at home, she still has daily medications, and 2 daily injections.  We are slowly taking steps in the right direction, and we look forward to the day that we will head home with less hospital equipment and fewer medications to give.  But for now we are focusing on the 2 wonderful weeks that we will spend, all under the same roof. 

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