On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, January 25, 2012

Splish Splash

Tonight, for the first time in her life - Phoebe took a real bath in the tub.  Because of her very young age at diagnosis and the various central lines that she has had since then, she has never really taken a bath.  Or at least a real bath, with bubbles and toys, and the chance to splash and play.  So tonight, she sat up, surrounded by bubbles and toys and played and laughed with Mae. While I was running the bath she stood up next to it and lifted her leg, trying to climb in by herself.  Needless to say, she loved it. 

Tomorrow we have another visit to the hospital, this time to see another neurologist.  We are hoping that the addition of this doctor will help to solve the problem of Phoebe's eyes and the swelling on her optic discs, so that we can put all of the worry and questions associated with this behind us once and for all. 

In the meantime, Phoebe continues to do very well.  She is starting to act very much like a "normal" toddler, and like her big sister, rarely sits still.  Tonight she had rice, beans, her usual avocado, and sweet potato for supper and she has added cucumber, raisins, and apple to the list of foods that she will very willingly try.  Still tiny bites but she makes wonderful progress everyday.  

And ... this week's chimerism is 100% donor cells.  Go Phoebe go ...


  1. very cute picture, she looks so happy!!! I remember the day my son took is first bath with no ''saran wrap'' aroud his arm to protect is pic-line, lots of joy and fun!
    good luck with the neurologist, I hope he will give you some answers.

  2. Thanks Sophie :) For keeping Phoebe in your thoughts. It means so much to us. So happy to read that your son is doing well.

  3. hi Jenny, thank you for taking your precious time to write a message for me, have a nice day, Sophie