On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, February 16, 2012

Day +77

Another visit to the hospital, and another good day.  Phoebe has gained .2 kilograms - weighing in today at a whopping 8.7 kgs.  This means that the tube stays out, which is wonderful as each day seems to bring with it an increase in appetite and interest in food.  She is happily embracing foods of all colours now - enjoying brocoli and asparagus very much. 

We also saw the eye doctor again today, and thankfully after she looked into Phoebe's eyes, she saw improvement.  She said that the papilledema in both eyes is shrinking - her left more than her right, and that the colour of the nerves of both eyes appears better.  Good, great, wonderful news.  And a giant sigh of relief.  The vision exam also showed that Phoebe still sees very well.  She will continue to be monitored closely with another exam in 2-3 weeks followed by a repeat lumbar puncture to check for increased pressure, but we are so happy to see some change.  Some good and positive change. 

Finally, today's chimerism result is 100% donor 2 cells.  We are day +77 today, which means we have now officially passed day 76 and are well on our way to 100.  Day 76 marks the relapse of Phoebe's first transplant and we are happy to put it and all memories, anxiety, thoughts and feelings of that behind us. 

Go Phoebe go. 

1 comment:

  1. wonderful, thanks for sharing the good news