On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Friday, March 16, 2012

Rock-a-bye Sweet Baby Pheebs

Tonight for the first time in weeks, Phoebe is fast asleep before midnight. Hallelujah and thank you to the kind folks at Target House for bringing sweet relief in the form of a rocking chair to our apartment today. We are weaning the steroids but I think that this renewed love of sleep is a sign that Phoebe has really just missed her rocker. Thinking back, she has spent a lot of her life sitting in a rocking chair with Jon or I and I have missed rocking her to sleep. Singing to her long after she has closed her eyes and just cherishing the quiet and her in my arms. Now, this beloved chair is back, and just like that, things are looking up. We may actually get some sleep tonight.

This return to a somewhat more normal sleeping schedule and the delivery of the glorious chair could not have come at a better time. We are counting down the days, 10 to be exact, until Jon starts the long drive home to Ottawa. We will.
miss him and life is much easier with both of us around, but we desperately want life to return to some kind or normal and we believe that if we start to put some pieces back together, the rest will hopefully fall into place.

And so homeward bound he will be with a list and a plan. A plan to return to work, to reconnect with friends, and a list of things to do. Things like build a fence and take down really terrible ceiling fans.

If you build it we will come.

As for Phoebe, we don't yet know how much longer she will be in Memphis and to be honest, I am a bit afraid to ask. Worried that the answer will be months instead of weeks, but all things related to her rash, gvhd, and liver enzymes continue to improve. She is also becoming very comfortable cruising around the furniture and pulling herself up and this is how she spends most of her playtime. She is thriving, trying something new every day and we are so happy and relieved to see her doing so well.

Day + 106 today ... Go Phoebe go.

1 comment:

  1. hi Jennie, thank god for the rocking chair! I hope your husband will have a safe trip back home in Ottawa and I hope that you and your daughters will join him very soon. Take care, Sophie