On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, June 19, 2013

Jump Phoebe Jump

We are still waiting for MRD results of Phoebe's most recent bone marrow aspiration, but so far the news - although complicated which I will explain, is good.

The chimerism results are in, and Phoebe continues to have 100% donor 2 cells in her bone marrow.

What makes this complicated is that the sample of bone marrow that was taken at CHEO last week was diluted with blood. They still sent it to St.Jude and St.Jude still ran the tests, but their lab is unable to determine whether or not it is purely bone marrow. So, although we will still wait for the final results to come in, and this initial news is good, the test will probably have to repeated. Sigh ...

All test results, hospital visits, and cancer treatment aside, Phoebe is amazing. She is growing - a whole 3 cm in the past few weeks and she appears to learn a new word every day. And she has learned to jump. A bit later than most, but she makes up for it by jumping all day long. If you even so much as mention jump in her presence, she will stop what she is doing and jump for you. She has now caught up, if not exceeded her milestones, and we are very proud of her.

This Saturday in Ottawa there is a great event -"Clutter and Cupcakes". It is as good as it sounds, and all proceeds go to Candlelighters and CHEO. There will also be a lemonade stand for Miss Phoebe. Special thanks to the organizers, the wonderful Gabriella's Groupies, for thinking of our family. For more information see the photograph below.

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