On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Friday, January 31, 2014

Amazing and Cancer Free

The long awaited MRD (minimal residual disease) results are in and they are negative! No cancer cells were found anywhere in Phoebe's body or bone marrow and I am grateful, ecstatic and just so relieved.

Our next round of tests will be done in Memphis in 3 months and Phoebe will be finishing this year of maintenance chemo, sometime in April. I think it will be the beginning of April, but we don't have an exact date yet. This will hopefully mark the end of chemotherapy and cancer treatment for Phoebe forever, but as we are often reminded, we are in uncharted territory.  There is no data to look to for answers and no one who can tell us what may happen next. We believe that Phoebe will be okay, and that is enough for us right now.

Embracing all things hopeful and believing that all will remain right in our little world, I picked up Kindergarten registration forms for Phoebe today.

In other news, the voting for CTV's Amazing People has started. Phoebe is among these incredible and inspiring and simply amazing people and you can vote for her or for her friend, Bryce Jude, whose story is also featured, by clicking this link. I think you can vote everyday. The stories are amazing and well worth watching. We are very proud and honoured that Phoebe's story is among them and looking forward to taking her to her very first "Gala". She has her party dress and fancy shoes all picked out and tries them on at least once a day. Thank-you to CTV for sharing her story.

And thank-you to all of you for continuing to travel this road with us. 


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