On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, February 12, 2015

Love for Phoebe Rose




Tomorrow is a big day for Phoebe. She has a bone marrow aspirate, MRI and CT scan. The results of the last bone marrow test are confusing as although things looked improved under the microscope, the chimerism results told a very different story. Phoebe's last bone marrow chimerism was just 14% donor cells, down from 50% on the previous test. Not good at all. 

Despite these results, Phoebe appears to be doing very well - she is often up playing and dancing with Mae, she has managed to eat enough over the past few days to keep her feeding tube out, and she is full of joy. Her energy does not match her bone marrow results. Tonight, she is connected to IV fluids in preparation for her tests tomorrow. The fluid is heavy and kept in a bag that is half her size, but instead of letting it slow her down, Phoebe drags the bag behind her as she dances. Her joy helps us through and keeps our minds off the terrible news that we heard last week. 

Phoebe's tests begin tomorrow at 10:30 and we hope to have some news later in the day. If you could, please take a moment to send some love Phoebe's way tomorrow morning. Join us in visualizing healthy cells and a healthy and strong Phoebe. 

We are so grateful for the love and support that we have received on this journey. 

Thank-you to the staff at St.Paul's Catholic High School in Ottawa for their ongoing support and for holding a fundraiser for Phoebe at their Christmas party this year. 

Thank-you to Manor Park staff and students for your support - and to the Manor Park alumni who organized a bake sale for Phoebe today - we are amazed by your spirit and kindness. 

Thank-you to our friends at RJW Stone Masons - the Parliament Hill site, for continuing to help our family with weekly 50/50 draws. Phoebe can't wait to thank you in person. 

To Catherine Landry and Tama McCartney for creating a one of a kind t-shirt from one of Phoebe's prized paintings - you have lifted our spirits and made Phoebe so happy and proud! For more information on these shirts and how you can purchase one (quick, they are selling out fast!), please see : 

http://teesforthepeople.com/products/monkey-love-by-phoebe-rose

It takes a village and we wouldn't be able to do this, to stay in Memphis where Phoebe needs to be, without help. There are no words that express how grateful we are. Thank-you for traveling on this journey with us. This road is long, so much longer than we could ever have imagined, and it is incredibly hard. Your support, love, prayers and shared hope helps us through. From the bottom of our hearts, thank-you.






3 comments:

  1. Will be praying and visualizing healthy cells and a healthy and strong Phoebe!

    The girls are adorable!

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  2. Praying now & will be praying tomorrow for sweet Phoebe's miracle. Keep dancing sweet girl ~ sending hugs & love from the Henrys in California <3

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  3. It's 10h20 Phoebe and I'm thinking of you. Sending you all the strength, love and prayers I can muster for you. Go Phoebe Go. We love you. �� �� ��

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