On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, April 30, 2015

Phoebe is okay - she had a restful night and she is still resting today. She is still having fevers and they seemed to be higher and not as easily controlled since the cells, so she is now receiving IV Tylenol every four hours so we can hopefully stay ahead of the fevers and her high heart rate. So far so good. She is off the blow by oxygen with 100% oxygen saturation on just room air - this is good news. Her blood work looks okay - despite the addition of many new medicines to treat the fungal infection, her liver and kidney function look perfect. The inflammation/infection marker in her blood is very high and it has continued to rise. We are hoping the jump it made today is a result of the granulocytes and not the infection getting worse. Tonight I will get another shot of GCSF to boost my white blood cells so that I can give more granulocytes for Phoebe tomorrow. 

We hope for more progress, more healing, and more smiles. 

Thank-you all for continuing to keep Phoebe in your thoughts and prayers.

1 comment:

  1. So happy Phoebe has been able to rest.
    Praying for more progress, healing and definitely lots and lots of smiles!