On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, May 6, 2015


Today Phoebe was transferred to the ICU. She received granulocytes last night and early this morning and although things seemed to go smoothly, by this afternoon, she was breathing very fast. She was struggling to breathe, needing more oxygen and just working too hard. Our room was full of people - nurses, a nurse practitioner, a respiratory therapist, fellows, the attending physician for the leukemia floor, and the ICU attending. Thankfully, Mae was being entertained and kept busy with some wonderful nurses and volunteers. Phoebe had an X-ray and more blood tests to check blood gases both of which looked okay, but within minutes of the ICU attending laying eyes on her, we were on our way to the ICU. 

As I write this, Phoebe is settled in the ICU. She is still on blow by oxygen - mostly because she refused the nasal cannula - and the amount of oxygen is greater. She is still breathing quickly and we are worried. So very worried. 

We are not sure what is causing her breathing difficulties but we are hoping it is "just" the granulocytes going to work on this horrible infection and things will calm down soon. 

Please keep our sweet and feisty Phoebe in your thoughts and prayers.