Yesterday was the bone marrow aspiration and while Phoebe was sedated, her central line was replaced to hopefully avoid another infection. I have honestly lost count of how many of these central lines Phoebe has had, but I think this is number 13. We are still waiting for the chimerism results, but so far, the bone marrow looks better. Before the gemtuzomab, Phoebe had 91% disease in her bone marrow and it was a mix of ALL and AML. Today, her MRD (minimal residual disease) is 8% and it appears to only be AML. This is interesting and encouraging as the gemtuzomab is only targeting the myeloid leukemia (AML), and the concern among all of Phoebe's doctors was that it would get rid of this population of leukemia and cause the other, the ALL, to take over. This is not what is happening and so we are continuing with this treatment and Phoebe will receive 2 additional doses over 4 weeks. This result is really the effect of one single dose and we are relieved. Finally, something is working.
Thank-you all for keeping Phoebe in your thoughts and prayers. This road is long, so much more so than I could have ever imagined. We are so grateful for the love and support we continue to receive. We are weary but hopeful. Always hopeful. And thankful for each day.
Go Phoebe go ...
Go Phoebe Go is right. She is amazing and so is her family. Continue to hope!!!
ReplyDeletePrayers that things keep going in the right direction.