On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, December 3, 2015

We are still here. Making our way through each day without Phoebe is hard, painful, sometimes it feels impossible and still none of these words even begin to describe it, but that is all I have right now. We get caught up in the busyness of the day, and there are moments in which we feel okay, but then the waves come crashing in. How can it be that Phoebe is gone? How can it be over 2 weeks since we last heard her little voice? We long to hold her. To see her smile and hear her laugh. To just have more of her. We watch a lot of Phoebe videos and look at pictures. Mae asks to do this before bed and I am grateful to watch and remember all those times we laughed. Mae will often say - "we had a lot of fun together, me and my Phoebe".

Mae started school on Wednesday and although some tears were shed on the first day (by all of us), she is happy to be back. Seeing her smile and hearing about her day warms my heart. Listening to Mae talk about how they spoke about Phoebe on the first day and the beautiful and warm welcome she received was just what we needed. We are so grateful for the love, open arms and support that Mae and our family continues to receive from Manor Park. 

We are often reminded of how loved Phoebe is or how she is remembered and honoured. We appreciate each comment, message, card, and act of kindness. It means so much to us to hear Phoebe's name and to know how she reached you, inspired you, or simply made you smile. Thank-you for sharing this with us. She does this for us and so much more. 

We would also like to thank the many people who have been making sure we are well fed. We are overwhelmed in the best way by your kindness. We wish we could thank you all in person and hopefully one day we can. Please know that we are so grateful for this support. 

Thank-you to Dave and the staff at the Empire Grill for generously hosting Phoebe's reception. Thank-you to Kinki for making Phoebe's favourite sushi, to Uncle Scot for making all of Phoebe's other favourites, to the Frasers of Fraser's Cafe for the beautiful and delicious food, and to Jacobsens and Wolf and Ada's for contributing delicious deserts. Thank-you to Sue Krueger for the beautiful and perfect flowers and arrangement for Phoebe. We know our foodie Phoebe would have loved all of this. Thank-you to family and friends for helping to organize everything and basically holding us together. 

We are taking things one day at a time - missing our sweet Phoebe so much. In the spirit of Phoebe and following her lead we laugh as often as we can and we do our best. We take nothing for granted. In memory of Phoebe we will continue to shout it from the rooftops for children with cancer - our shout may be more of a whimper at first, but we hope our voices will be heard. We know Phoebe would want us to make this okay. 

We love you Phoebe Rose. 


  1. Beautifully wrote. Your in our prayers.

  2. Beautifully wrote. Your in our prayers.

  3. Your little girl will never be forgotten.

  4. Sweet Phoebe will always be with you! I will be praying for all of you as you try to find a way to get through these hard days. It sounds like you are surrounded by loving family and friends and that is wonderful!

  5. We think about you and your girls often. So much love from our family to yours xo