On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, June 1, 2011

Amazing Phoebe Rose

Today we heard the most amazing news.  The doctors are so impressed with how well Phoebe is doing, that they are talking about sending us home.  Amazing, wonderful, and very surprising news.  Last week, when everything seemed to be happening at once, when Phoebe had so many challenges that she had to face, home seemed so far away and I remember thinking that we would probably be at Sick Kids for even longer than we originally expected.  But, unstoppable Phoebe Rose has once again proven her incredible strength and resilience, and now we have not only caught up with the train, but Phoebe has completely turned it around. 

Right now we are taking things one step at a time, weaning Phoebe off of her pain medications, and IV nutrition.  She is not interested in eating by mouth at all, but we are hoping that that will happen once she is feeling better.  She is tolerating her NG feeds very well, and everyday she gets closer to her goal volume.  The doctors have switched many of her medications from IV to oral, so that it is possible for us to go home rather than be transferred back to CHEO.  Amazing.  It will all depend on how Phoebe does over the next week as to whether we will be sent to CHEO or home, but the simple fact that home has been mentioned is so wonderful. 

Today Phoebe saw an occupational therapist who will help us with her feeding and developement.  Although Phoebe has spent the majority of her life in the hospital, it has always been important to us to at least have the milestones that she should be reaching in the backs of our minds.  Now as she approaches her 10 month birthday, I find it hard to believe that she has spent most of her year in the hospital and at times it is very difficult to think back on all that she has been through in her short life.  Despite all of the obstacles that she has faced, all of the many challenges, as the weeks go by she continues to grow and learn new things.  Phoebe has taught me, among many other things, that anything is possible.

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