On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Tuesday, June 21, 2011

Every little thing gonna be all right ...

Phoebe is scheduled for surgery tomorrow at 1pm, to have her PICC line reinserted and while she is sedated, the doctors are also going to do a bone marrow aspiration and skin biopsy.  They are being very cautious and want to rule out anything that may be related to the disease, and we are anxious to close this chapter and to get back on to the path that will lead us all home.

The bruises on Phoebe's head are looking better, more like bruises than anything else and her blood counts also seem to be stabilizing.  She hasn't needed platelets today and her red blood cell count is holding strong at 90. 

Throughout this journey, in relation to some of Phoebe's issues, we have often heard the doctors say - I have never seen this before.  Phoebe as we have learned, is truly one of a kind and how she has responded to many things proves just that.  This is no different.  Just Phoebe doing things her way, and moving at her own pace.  She will not be rushed on her road to recovery.  

We will be anxiously awaiting good news tomorrow following Phoebe's many tests.  Please keep her in your thoughts and prayers and send some positive energy her way as she embarks on yet another big day.   And join us in singing Phoebe's favourite song ... "...don't worry about a thing, 'cause every little thing gonna be all right ... "

1 comment:

  1. PR Every little thing is going to be alright. We are thinking of you all. You rock. Jx