On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Tuesday, July 12, 2011

Four more sleeps

I'm sitting with Phoebe at the day hospital at Sick Kids, watching her nap in her stroller.  There is a crib in the room, but each time I try to put her in it, she cries.  She also began to cry as soon as we reached the 8th floor and started to make our way to the clinic.  Too many bad memories, and like her big sister Mae she seems afraid that her new life, the one with all of us together at home, might be snatched away from her.

Luckily for us, the doctors have agreed to let us head home on Saturday.  Phoebe will have 2 more visits to Sick Kids, one on Thursday to test her blood, and again on Friday for her 2nd of 6 lumbar punctures with intrathecal chemo.  Today her blood work looked great, her platelets have finally started to come up on their own and are 103 today, and her hemoglobin and white blood cell count are still holding strong. 

Phoebe is loving her time at her temporary home.  She loves watching her big sister, and she will often follow her with her eyes, craning her neck to look as Mae jumps and runs around the room.  Since she has been home she has also made some progress in her eating.  She will now eat some solid foods, her favourite being avocados and arrowroot cookies.  She is still not really drinking anything at all, but we are encouraged by the progress she has made so far, and we know she can do it.  It will just take some time, like everything else. 

For now, we are enjoying our time at home together and we can't wait to pack up the car and head towards the 401 - back to Ottawa and all of the comforts of home.  Four more sleeps. 

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