On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Friday, April 27, 2012

A lovely and unexpected change in plans.

Because it is non stop action around here, we have a surprising change of plans. We are leaving on Tuesday the first on May. Heading home one wonderful week earlier than expected. Mae is beyond happy and she can't wait to get home to see her daddy and her house.

This time last year we were packing things up and heading to Toronto for Phoebe's first transplant. It is unfortunate that we are not celebrating a happy year post transplant but I am happy and I have a wonderful feeling about all that the future holds for Phoebe.

In other Phoebe news, the doctors have decided to stop her tacrolimus, the immuno suppression drug that she was taking to treat her GVHD. They explained that although Phoebe is doing very well and there has been no sign of any bad cells, her Leukemia has proven to be very aggressive and they want to give her every opportunity to fight it. Ending the immuno suppression will allow her new cells to really mature and work their magic. A well functioning immune system, I have learned, has the ability to keep the body free from cancer. The hope is that her GVHD will stay away, but if it does return, we will cross that bridge when it comes. Leukemia is a very scary and aggressive beast and so I am happy that they are doing all that they can to try to keep it where it belongs. Away.

Four more sleeps until we are sleeping in our own beds, cancer free. Thank you St. Jude.


  1. wow wow wow, have a nice and safe trip back home,

  2. Learned of your blog via Annie (Kayla's mom) and I am thrilled for your upcoming St. Jude departure and being cancer free!!! My daughter was there in 2010 and just received a BMT in February at Lucile Packard in California. We are at day +77!!
    So happy for your family. I will pray for Miss Phoebe Rose and for her continued good health!!!

  3. So happy for Phoebe, you and your family to be going home!! Praying for safe travels and continued increased health for sweet Phoebe. Blessings & Love from the Henrys.