Phoebe is drinking milk and eating bananas. She will also say "banana"
and something that sounds a lot like "milk" in a very proud and excited
voice and this all makes me very happy. Since the removal of her ng
tube she has been eating, but it has been the same foods over and
over. And up until this new addition of milk, she would drink only
water. I am imagining happily the weight that she will hopefully gain
with these new foods. And it all seems so wonderfully normal - bananas
and milk.
In other Phoebe news, she is now standing alone for
longer periods of time but as soon as I point this out - saying to her
"look Phoebe, you are standing!", she gently lowers herself back down to
the ground and laughs, as if to say - I will walk and stand on my own
terms, thank you. She is a feisty one, our Phoebe. Yesterday during
her physical therapy appointment she finally allowed the therapist to
play with her, but as soon as she did something Phoebe did not approve
of, her hands were pushed away, and she was met with intense shouts of
"no!" and "ma!" - the latter being Phoebe's way of saying mine.
Yesterday's
check up showed near perfect blood work, including liver enzymes which
are finally, for the first time in over a month, under 100. Still not
normal, but close, and very far away from the critical level of 1800
they were previously. The levels of her medications are still being
monitored closely and adjusted until we reach the right dose. Her
immuno suppression at yesterday's check was in the normal range, but her
anti fungal drug was a bit too high. We will be back again this week
and next to monitor the levels and then perhaps we will discuss a
possible home coming. Hopefully.
Mae is starting to talk about
returning to Ottawa more and more as each day passes. On the weekend
she came to tell me with great excitement in her voice that "Phoebe's
rash is gone away, we can go back to Ottawa now!" I am so very excited
for the day that we can board a plane to go home, when Mae is able to
get back to her house and her toys and all of the baby dolls that went
home with her daddy. She calls her daddy regularly to check to make
sure that he has properly put all of the babies to bed. We are looking
forward to when we can be together again and to adding a bit more normal
and fewer doctors visits to our daily and weekly routine.
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