On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Saturday, May 19, 2012

Daddy and daughter road trip ...

Phoebe and her daddy took a road trip to Toronto this week.  Just the two of them because Mae was sick with a cold and therefore needed to be separated from her sister.  So off they went, for a night in the big city and a check up with Phoebe's doctors.  Apart from a long ride home in long weekend traffic, it was a successful and joyful time.  After the long two week wait without being tested, Phoebe's blood work looks good and her doctors were happy to see her.  She showed off her new skill, walking down the hall past all of her doctors and nurses, some of whom haven't seen her since she was very ill and with an uncertain future. Walking is now her thing and she spends most of her time on her feet, looking very proud of herself.

Phoebe is very attached to her daddy and when he left to go and get things from the car soon after they got home, the house was suddenly filled with shouts of daddy? as she walked around searching for him.  Like two peas in a pod, they are.  During their time away, Phoebe also learned to drink from her cup without the lid on - just like a big girl and without any big spills.  She is looking and acting more and more like a little girl and less like a baby everyday.  Growing up and growing fast.  She is finally gaining some weight, and after many months in the 8kg range she is topping the scales at 9.2 kg - something that makes us and her doctor very happy.  Grow Phoebe grow.

So far, Phoebe has yet to catch Mae's cold but we will be watching her very closely over the next few days.  For now, Mae is keeping her distance and we are holding our breath.  With Phoebe's newly recovering immune system, a cold could turn into something serious and it is something that we hope to avoid.  Fingers crossed.

Our next stop on the hospital list is a visit to St. Jude at the end of the month.  This will be a chance for Phoebe's doctors to look her over, for the chimerism and other important tests to be run, and to make sure that everything is still on the right track.  We are hopeful for a short and sweet visit, with good news and a chance to see some of the families that we miss and the wonderful and very brave children that are never far from our thoughts. 

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