On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, May 6, 2012

A trip to the big city

We have now been home for five whole and very full days.  It is so nice to be home and to be making this house that has been ours and mostly empty for almost two years, into a home.  We had a very successful and happy visit to Toronto's Sick Kids hospital on Friday.  I have always loved the energy at Sick Kids - there is this wonderful positive feeling and I know that within this building, many people are working hard to save lives and to find cures.  I was happy to be back, despite the fact that it took us five long hours to get there.  Everyone that we met was so happy to see Phoebe and we were excited and proud to show her off.  All of her blood work came back looking good and normal and the focus became nutrition, weight gain, and development.  All of which Phoebe's doctor is happy with - all things considered, but agrees that now is the time - when we are "off treatment" to really work on growth in these areas. 

Phoebe's doctor was so happy to see her and there was a wonderful feeling of joy and excitement in the small room.  He sat across from us just watching her and at one point, commented on how far she has come.  Upon hearing that she is 5 months post transplant he actually clapped his hands together and cheered.  I will say it again - there is nothing quite like joyful and excited doctors.  And defying odds.

And so here we are at home and we now have two entire weeks off from hospital life.  I was thinking to myself when I heard that this was the plan, that I couldn't remember the last time we had this much time between appointments.  Then I realized that we have never had this much time off from a hospital.  We are hoping that less time in a hospital, and more time enjoying the comforts of home, will become our new normal.  And we feel very blessed to have this time together. 

And now for some pictures ...

The Target House - where we would call home for 7 months and a truly magical place. 

Our memory board - a small glimpse into our stay at St. Jude that will hang on what was our floor at the Target House for other families to see. 

 Leaving on a jet plane ...

 So happy to be home!

Happy to be swinging sisters. 


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