On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, February 21, 2013

Day four Complete!!

Day four complete. Six days to go.

All is going very well and so far, Phoebe appears to have no side effects. Her doctors mentioned that she may lose her appetite and have nausea but so far all is good. Probably thanks in part to the steroids that she is still taking, she is eating up a storm.

She was seen by the eye doctor today as she has had problems in the past with papilledema, which is swelling of the optic nerves, and I am happy to report that that problem appears to be fixed right now. Good news.

And so, for now we continue to forge ahead. Everything is going as planned and we are happy that the treatment is going well and that Phoebe is doing well. She is bossing her big sister around daily and is quick to tell us what she likes and wants. Feisty Phoebe is a force to be reckoned with.

We are once again feeling very thankful for all of the support being sent to us from home.

Tomorrow night at Kalyana Yoga Studio in Ottawa, a very special Karma Yoga class is being held in support of Phoebe. For more information, please visit http://www.kalyanayoga.ca/news-and-events. Thank-you to Pauline and instructor Anne Domitrovits for working to put this together.

On March 9th at the wonderful Thyme and Again Catering in Wellington Village in Ottawa, the amazing and very talented Anne-Marie Bouchard of AMBPhoto is holding a children's portrait fundraiser in support of Phoebe. Thank-you Anne, folks at Thyme and Again and Amy and Jen: Decor for holding this wonderful event. For more information, you can visit Anne's website and blog at http://ambphoto.com/blog/2013/02/21/photos-for-phoebe-a-fundraiser/

And this Sunday, the incredible silent art auction is being held at the Art Gallery Rental and Sales, 2 Daly Ave from 1-4. If you are a lover of art it is not to be missed. I have heard there are many other great items up for grabs as well, and delicious food to be sampled.

We are surrounded by kindness and are so grateful for this support. Thank-you all for continuing to follow Phoebe's journey. When I started writing in this blog I never imagined that two and a half years later I would still be writing and we would still be fighting. I have now written over 294 posts. A novel. One day when my girls are all grown up, I hope to give them this story to read. Perhaps when they are rebellious teenagers.

Here is to those rebellious years. In many ways I can't wait.

1 comment:

  1. So glad Pheobe is feeling well! I hope she keeps up great strength and energy for the rest of her treatments. What a blessing all the support you are receiving. I agree that Phoebe truly does rock!