On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, February 14, 2013

Kindness Abounds

We are surrounded by kindness and love and I thought what better day to write about this than Valentine's Day.

The TKESaw is in its final stretch. Just under 20 hours of see-sawing fun left and the energy and spirit of this event has stretched all the way to Memphis. Phoebe herself has taken in the fun and stood mesmerized by live feed of the see-saw for quite some time yesterday. I can only scratch the surface of what this means to us and how it feels to know that so many people are behind us and Phoebe in this fight. I have always felt, even when Phoebe was very small, that this love and support helped her to get up every day and face whatever that day had in store. I know that it greatly helped me. I still believe this to be true and think that there is much power in positive energy.

Thank-you to our new TKE friends for all that you have done. You have raised awareness, raised funds, brightened our days and lifted our spirits. You have given much needed attention to pediatric cancer and opened eyes and hearts to the children of St.Jude. You gave us a lesson in twitter to which we are very grateful (although Jon is much better at it than I am). Your energy is contagious and inspiring. You are good people.

Today we moved to the Ronald McDonald House. It is kind of incredible that we have been on this path for so long and have not yet stayed at a RMH. We were greeted with kindness, welcomed with open arms and hearts and served a warm and delicious meal. Mae and Phoebe enjoyed crafts, exploring the many playrooms, and are now fast asleep in their beds. We have a bit more space now and a place to cook and enjoy meals as a family which will make a world of difference.

Our community both near and far is quite possibly the best there is. The love, support and kindness is felt and so very appreciated. It honestly keeps us going.

We wish we were home sometimes so that we could take part in these wonderful events and thank all of you in person but we know that here is where we need to be.

On the 24th of February at the Art Gallery: Art Rental and Sales Gallery, 2 Daly Avenue in Ottawa, a fantastic silent art auction is being held in support of Phoebe. Twenty-five local artists, including some very good friends, have donated their beautiful work. There is a team of organizers working to make this a special day and their hard work, energy and simply beautiful spirits have left me speechless often over the past many weeks. It is an event not to be missed and I wish I could be there, if only to experience the wonderful energy that will undoubtedly be in the space (while admiring the incredible artwork).

For more information on this event, see the event page on Facebook.


Kindness abounds. And I have said this before, but if love could cure cancer, we would be all home and safe in our beds.

As for Miss Phoebe now, the good news just keeps coming and we are hopeful that it will continue. The chimerism of Phoebe's blood is 100% donor 2 (my cells). There was a bit of a mix up with the bone marrow chimerism in that it wasn't sent, but now that it has been, we should know those results soon. The survey of Phoebe's t-cells shows them all to be within normal range and in the words of our nurse practicioner and doctor, they are "robust". Robust is certainly good. Phoebe starts her radiation on Monday and although she is currently on another course of steroids, she is doing very well.

Go Phoebe Go ...

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