On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Friday, March 22, 2013

So far so good ...

Phoebe's bone marrow aspiration went well yesterday. She was playing soon afterwards and had a great day.

Today we heard wonderful news. The preliminary results are clear of leukemia and her bone marrow chimerism is 100% donor 2. We are now waiting for minimal residual disease (MRD) results which will tell us if there is any leukemia, even if a very small amount, in the bone marrow.

We are off to a good start and hopeful for continued good news. Phoebe is a beautiful picture of health and is living life to the fullest. She is eating really well and will try anything. She loves Kale which makes me smile. Kale and vegetarian sushi are her two new favourite foods. She is adventurous in all she does.

We have almost an entire week off from the hospital and plan on exploring more of Memphis and maybe even taking another road trip.

Mae and Phoebe were excited to receive some short video messages from Mae's teachers and a few classmates. I think they have watched them a hundred times. Phoebe's favourite is a video of Mae's class singing Oh Canada. When she watched it for the first time, she smiled and said, "that's my home. That's my classroom. My class is singing". A couple years too early, but she is right about home. And very wise.

Go Phoebe go.

In other news, there is a great fundraising raffle being organized in support of Phoebe. Jon and I are so grateful for all of the kindness and support for our family and for our fabulous community and friends. This raffle is being held at the Hot Tots Children's Consignment Sale (Earl of March High school) on Saturday, April 6th, from 9-4 and Sunday, April 7th from 10-1. There are wonderful prizes up for grabs! For more information about the event, and how you can help, please email Jenn at yjguitard@hotmail.com, or see: https://www.facebook.com/events/428303427261687/?ref=3is

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