On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, March 10, 2013

Spring is in the air

Spring is in the air. Yesterday was a beautiful sun-filled day. We walked to the park, stopping frequently along the way to watch kites, boats, and admire spring flowers all very much in bloom. Mae and Phoebe spent a lot of time on the swings, and Phoebe started to teach her big sister how to "pump" her legs so that she can swing without being pushed. It's funny, Mae can do this but refuses as she prefers to be pushed. Phoebe, always so independent and eager to be a big girl, is excited to learn and tries to pump her little legs each time she is on a swing. She likes to do things by herself and always seems so eager to grow up fast. It is really something to watch her in action.

We ventured from the park and had a picnic lunch. All in all a perfect day.

We were planning to go on a road trip this weekend but a standard urine test came back with bacteria and Phoebe was started on antibiotics, just in case. She hasn't had any fevers so we are hopeful that her body is doing its thing and fighting it off, but the antibiotics will help to ensure that the bacteria clears. We were nervous to go anywhere for fear that a fever would send us rushing back home.

The week ahead is very quiet. We hope to hear results of the most recent chimerism test, and Phoebe has a check up on Thursday. The following Monday is a big day with a bone marrow aspiration.

For now we will continue to enjoy spring and all that it offers. The season of growth is upon us and my hope is that just as the beautiful flowers come into bloom, healthy and strong, so will my sweet Phoebe.





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