On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Friday, May 31, 2013

Out with the old ...

Out with the old, in with the new. Line number 10 (I think, although I may have lost track), is out and a new port is in.

The surgeon who did this procedure today also put in Phoebe's very first line. She was so young and so very small, just 10 weeks old and he had to order the line from the US as she was the smallest patient that CHEO had ever given a central line to. Today he removed what we hope is her very last central line and put in what we hope is her one and only, and last port.

In the recovery room after Phoebe woke up and was happily munching on a post-op popsicle, I pointed out that her "tubies" were gone. She looked down at her chest and a look of sadness appeared on her face - I worried that she was upset as these lines have essentially become a part of her, but she burst into joyful tears and said "I can go swimming now!" Then, after a thoughtful lick of her popsicle, she said, "no, I won't go swimming now. After my Popsicle".

Sweet Phoebe Rose.

We are back at CHEO on Monday for chemo as Phoebe's counts have recovered and her blood work looks great and this weekend starts our five day course of steroids.

Splashing in the bath, cooling off on the splash pad, and swimming will all happen as soon as Phoebe has recovered - and we can't wait.

Phoebe getting her last dressing change at home for her central line.

Sleeping after surgery


Phoebe Rose

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