On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, July 3, 2013

A few things ...

Phoebe had her bone marrow test yesterday and the sample has arrived at St.Jude. We should know something next week or the week after.

We are anxious - actually this is an understatement, we are a lot anxious but holding on to hope and watching our girl shine.

Phoebe is finished her pulse of steroids for this month. Tonight at dinner, she ate more fish than the rest of our family combined, and she may have also eaten her weight in cheese today, but she has been incredibly moody and often inconsolable. I am hoping that she is on her way back. The days she is on steroids are particularly difficult because she acts similarly to how she did when she was sick. The bad kind of sick. Every month we are shocked back to those days that were filled with so much worry and fear. We are thankful when she is back to herself, but it can't come soon enough and the fear truly never disappears.

Tonight Phoebe took her weekly medication like a big girl, from a teaspoon. She is very proud and now takes all of her medications by herself, including her steroids which come in pill form. She just picks them up and pops them in her mouth. I am also proud, but wish she didn't have to learn these skills.

We will continue to hold on to hope as we wait for these results. They will be good. Please keep Phoebe in your thoughts and prayers.

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