On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, July 21, 2013

Phoebe and her friends sent me ...

Thank-you to everyone who has signed and shared the petition to light Parliament Hill Gold. We are now close to 900 signatures. I wish we had more, and I can't understand why after all of my and others' constant tweeting and sharing we don't have more. (I am on twitter now, and not quite sure what I am doing, but if you wish to follow I am @jennydoull1). I hope that as the momentum grows so will the number of people signing and sharing and that we can make this happen. We are moving a mountain, and I am learning to be patient. I just want the world to know how hard these kids fight just to be kids. They really shouldn't have to fight so hard.

If you haven't signed the petition yet, please do and if you would like to help us make this happen, you can also write to your local MP - tell them Phoebe and her friends sent you and that they want and deserve a cure and some attention. Tell them that you too would like to see greater awareness for pediatric cancer and that you would like to see Parliament Hill lit up gold. Tell them that children shouldn't have to suffer as they do to be cured of this disease. Tell them that cancer is the leading cause of disease related death among Canadian children. Tell them that too many children are dying of cancer and that we need better and more targeted therapy.

I believe that together we can make this happen. Are you with me?

The link to the petition: http://www.change.org/en-CA/petitions/light-the-parliament-hill-gold-we-will-light-the-hill-gold-on-sept-21st-for-childhood-cancer

As for Phoebe, she is doing very well. She is having fun just being a kid and growing and learning everyday. She has been swimming, to the beach, we are going camping this weekend for the first time as a family of four, and I am really excited. I am also very aware of how blessed we are to have these moments.

We will be celebrating Phoebe's third birthday very soon which is simply amazing and quite miraculous. Two years ago, almost to the day, we were told to take our baby home and enjoy her. That there were likely no options to cure her of her disease and very little hope.

Today, thanks to options, hope, research, persistence, a bit of luck, a lot of support and prayers and some incredible doctors, she is here. We don't know what the future holds, but as long as Phoebe is here and fighting, we are blessed.

We believe.

A big thank-you to Daun Lynch and her friends - they have just completed their ride across Newfoundland to raise awareness for childhood cancer. I am so grateful for all that they have done. To read about their journey, please see www.ridingforphoeberose.blogspot.com. Mae, Phoebe and I have really enjoyed following their adventure through the blog!

1 comment:

  1. Blessings to you all and HAPPY BIRTHDAY, PHOEBE!!!! We pray for you every day!!

    Love, The Eatmon Family from California

    (Our sweet girl turns 4 this weekend and she says your name during our prayer time every night. We all feel connected to you.)