On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, May 15, 2014

Phoebe is good. She has a runny nose and is recovering from a cold, but she is good. Spring is finally here and she loves playing outside, getting dirty, riding her tricycle, and "gardening ". Watching her joyfully discover new things, is the best. She talks often about school and how she will be starting soon with Mae. It is amazing, how far she has come. 

May 27th is the date for Phoebe's bone marrow test - the sample of bone marrow will then be sent to St.Jude for chimerism and MRD testing. It is so hard not to worry, but we try. This test will tell us if the last 99% chimerism was in fact a mistake and we need this to be so. 

On June 4th, Phoebe's dad, her grandpa and a friend are shaving their heads to raise money for childhood cancer research as part of the C17 Great, Big Head Shave. C17 represents the 17 pediatric oncology centers across Canada and the money raised will support childhood cancer research in Canada. We need research to keep moving forward, it is why Phoebe is here, it is important, and it is drastically underfunded. Please help fill the gap, help improve the lives of children with cancer by supporting research that aims to find cures and less invasive and more targeted treatments for childhood cancers. Help kids like Phoebe grow up healthy and happy. 

We are looking for team members and donations. If you are interested in supporting team Phoebe Rose Rocks with a donation or joining as a "shavee", please click this link. Thank-you! 


No comments:

Post a Comment