On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Tuesday, October 28, 2014

Granulocytes In

Phoebe received her first dose of granulocytes late last night. They were transfused into her PICC line from 11pm until 3 in the morning.

It was a long night. 

The ICU attending doctor sat outside the room watching the monitor as the cells went in. We were told by a few doctors to expect the worst. High fevers, breathing difficulties, and that Phoebe may need a ventilator. We tried to emotionally prepare for the possibility that Phoebe would need breathing support, and be put on a ventilator. We were and are terrified. How does someone prepare to see their child hooked up to a breathing machine? Thankfully, Phoebe sailed through the transfusion and required very little support. 

This morning, Phoebe's ANC is 2600 - that is 2600 cells that are fighting infection. Things are looking up. These cells will only last in Phoebe's body for two days at most, so we need her own immune system to recover for her to truly heal. To help her through and because the first dose of cells was so well tolerated, she will receive another dose today. 

We are seeing some improvements, but Phoebe is still very sick. We are hopeful. Always hopeful, but anxious for a day without fevers. 

1 comment:

  1. I don't know you, but I happened upon the blog ages ago through friends on Facebook. I think of your sweet girls so often, and wanted you to know you have a lot of people rooting for you, and hoping, and praying. I check every day, hoping for good news. Sending you all the warm thoughts I can.