On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, October 5, 2014


Phoebe is in the ICU. She had something that looked like a seizure or a stroke earlier today and was rushed to CT for images of her brain.

The images show something on her brain. It could be from a stroke or infection, or it could be related to leukemia. 

Tomorrow she will have an MRI of her brain, a CT scan of her entire body, an LP, an EKG, and her line will be removed because her blood cultures are still positive for bacteria. She may also have a bone marrow aspirate. She will have two IV lines put in for access so that she can continue to receive antibiotics, anti fungals and now also anti-seizure medicine. All of these tests should give a better picture of what is happening. We are taking things one day at a time.,

This is just so cruel and my heart aches for Phoebe. I have never been more afraid or felt more helpless. Holding Phoebe today and watching her as she was having a seizure was the hardest thing I have ever done. I can't put it into to words and I don't want to. 

Phoebe is sleeping now and peaceful. She is still having fevers. She has regained some movement of her arm that was completely limp earlier and although her speech is slurred, she is making sense. As we were going to the CT she pointed to a new playroom and said "what's that? Can we go there when I'm all done?" It was the most words she has spoken in days. These are small victories and Phoebe is amazing. 

Phoebe has an incredibly long day ahead of her tomorrow, please surround her with as much love, hope, prayer and positive energy as possible. 


  1. oh no... sending positive vibes, so that she feels better very soon and can go play in the new playroom. hugs and kisses to you xxx

  2. Sending love from Montreal. Xoxoxoxoxoxoxoxoxo.... Big fat positive vibes.