On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Friday, November 13, 2015

Phoebe had a very hard day today. We all did. On top of everything, she also has pancreatitis and colitis. Her belly is very swollen and it's affecting her breathing - making her work very hard, too hard, to breathe.  It is all just too much. We had some very difficult talks in the ICU tonight and there really aren't any words to describe this. Our hearts are breaking and we are clinging with all that we have to hope. Even if it is just hope for relief for our sweet girl. We need prayers, all of your positive energy, and love.

10 comments:

  1. I am so sad to read this. Praying hard for Phoebe's healing and for strength for all of you. #Miracles

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  3. There are lots of arms around you.

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  4. Praying for less suffering. Praying very hard.

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  5. Sending so many prayers, lots of love and hugs!!

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  6. We are thinking about you all and holding you close to our hearts. Sending love and light xoxo

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  7. Wishing you all the courage and hope you nedd to go through this... Love xoxox

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  8. Sending all kinds of positive thoughts and vibes your way!!! You've got this Phoebe!!!! Hugs to your whole family!!!!!!

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  9. Wishing you all strength and hope. Thinking of you.

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