Phoebe had a very hard day today. We all did. On top of everything, she also has pancreatitis and colitis. Her belly is very swollen and it's affecting her breathing - making her work very hard, too hard, to breathe.  It is all just too much. We had some very difficult talks in the ICU tonight and there really aren't any words to describe this. Our hearts are breaking and we are clinging with all that we have to hope. Even if it is just hope for relief for our sweet girl. We need prayers, all of your positive energy, and love.