The countdown is on ... Phoebe has completed 5 days of chemo for this round, and now we wait for her counts to recover. Once they are high enough, she will receive 4 treatments of high dose chemotherapy, more time to recover and then we will head to Toronto for her transplant. As we come to the end of this chapter, we are aware that we are not on safe ground yet, but we are almost there.
In a few weeks we will have a teleconference with the transplant
doctors from The Hospital for Sick Children in Toronto. We have been
told to arrive armed with all of our questions and with an open mind.
Our oncologist said that they will present many worst case scenarios as
they have to give us all of the possible complications and there are
many. She said that we may start to wonder why in the world we are
doing this, and then she said, but we are going for the cure. The cure. What a wonderful thing.
Phoebe is amazing. She has had some nausea due to the 5 days of
chemotherapy she just received, but she is smiling, laughing and
playing. Trying her hardest to be a normal baby despite the abnormal
atmosphere where she has been spending the better part of her first year. Her
first little tooth poked through yesterday, and against all odds she
has met the majority of her milestones so far. Unlike a "normal" baby, Phoebe
has some days that she spends mostly in bed, she has been outside twice
in five months, and has never seen things that most of us take for
granted. When Mae was Phoebe's age, we would take her outside everyday
and show her squirrels, dogs, the buds on the trees or ducks swimming
in the river. I would excitedly point out trains and trucks, and she
would laugh and catch her breath when she felt a strong gust of wind on her
face. We would stand on the porch and watch the sky change before a big
storm, and she would squeal in delight at the sound of thunder and the
sight of heavy drops of rain. Phoebe has yet to see a squirrel, or a
dog, and she has never heard the sound of thunder. Instead she sees
countless smiling faces everyday; happy and excited to see her growing and smiling
back. She sees the strength and resilience of other children, and she
listens and watches as they laugh and play. Often hockey, in the hallway just outside
her room. She sees and hears many wonderful things, but we will happily
have so much catching up to do once we finally get home.