On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, March 6, 2011

A great day

Today was a great day.  Jon spent the night with Phoebe and I arrived to see him and Phoebe cuddling, and little Phoebe laughing.  Phoebe's laugh is quite possibly the best sound in the world and we have missed it.  Following her last treatment of chemo, Phoebe stopped smiling and laughing for over a week.  It is so hard to go without seeing her smile, but just like everyone else, when she is sick and feeling unwell, smiling is probably the last thing she feels like doing. 
Phoebe has been working hard and is on her way to a full recovery from her infection.  Her belly is still slightly swollen and she is still on IV nutrition, but she has been fever free for 3 days and her neutropolys are on the rise.  Her next treatment of chemo is postponed until her counts and her infection recover, but everyday we get closer to that happening. 
Another reason today was great is that we learned that 3 "perfect" matches have been found for Phoebe.  It is up to the tranplant team to decide which match is the best one, but we are so grateful and happy to have options.  Two matches are from bone marrow donors, and one is a cord blood donation.  So wonderful.  Somewhere out there there are 2 people walking around who are identical in many ways to Phoebe.  All day long I have been thinking of these people and wondering who they are.  What they are doing for us and for Phoebe is life changing.  By choosing to become a bone marrow donor, they are giving Phoebe a chance to live a full and cancer free life.  There are no words to express how this makes me feel.  I am so incredibly grateful.
I recently registered to be a bone marrow donor on the national bone marrow registry. It truly is a life saving gift. Please visit onematch.ca for more information if becoming a bone marrow donor is something that interests you too. 


1 comment:

  1. Hi all,

    Just looked into making a donation here in the UK, for which you need to be a blood donor first. So I am now signed up to become a blood donor (also something I should've done ages ago!)And you can do both at the same appointment! Easy peasy.. Here's the link to both

    So exciting!!!
    Love you Pheebs!