On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, March 30, 2011

Here comes the sun ...

Today was another wonderful day.  Jon, Mae, Phoebe and I spent some time in the sunshine at the park.  Mae was very excited to show her little sister all of the fun and exciting things that there are to do at the park.  Phoebe went down the slide for the first time, with me holding her, and she loved it.  There were lots of smiles, laughter and happy shouts of "come on everybody" from Mae as she ran from one end of the park to the other. So wonderful to spend some time together as a family outside of the hospital room.
After the park, and for the second night in a row, we all had dinner together in Phoebe's little room.  Eating on our laps, Jon and I sharing in the parenting of Mae who sometimes decides that her dinner is "yucky" even though it is something that she loved the day before. Phoebe watched us eating very closely, she is not sure about baby food or drinking anything other than breast milk, so Mae showed her how to eat a cookie. "Look Phoebe (crunch, crunch), you do it like this". I'm sure that with some more daily guidance from her sister, Phoebe will catch on in no time.
Phoebe's neutrophil counts are up today and if they continue to stay up, she will start her next 2 day treatment of chemo on Monday.  We are going to make the most of our chemo free days and get outside to enjoy the sun, fresh air and good company as much as we can.

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