On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, November 30, 2011

Day -1

Day -1 today and Phoebe is doing very well. This morning during her visit with her occupational therapist she pulled herself up in her crib and shuffled from one side to the other.  This is amazing considering the fact that when we arrived at St. Jude two months ago she refused to stand.  Now she is standing and moving and shaking and we are so proud of her.

Today she had her last infusion of ATG and tomorrow and Friday from 9am to 3pm my stem cells will be harvested, taken from me through an IV line in my arm, and Phoebe will get them soon after.  I am anxious, excited and nervous, similar to how I felt with Phoebe's first transplant only slightly more nervous because it is my cells that have a big job to do this time.

In the meantime we are loving the joy and happiness that Phoebe and Mae bring to each day.  Their visits in the fish bowl attract the attention of many nurses as their smiles and laughter is contagious and so wonderful.   A reunion, when it happens will be amazing.  Today our doctor planted an unexpected but wonderful seed in my mind when he mentioned the words "home" and "Christmas" in the same sentence.  Perhaps a reunion will come sooner than we are expecting.

Anything is possible. 

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