On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, November 2, 2011

Hopeful homecoming

We are still in the hospital but hoping to be discharged tomorrow.  Phoebe is doing well, but the doctors want to keep her an extra night because she received another IL 2 injection today, and they can sometimes cause fevers.  She has thankfully not had that side effect, so far, and we are hoping that her temperature remains normal.  We are anxious to have her back at home, and to be together as a family again before she starts the transplant process and what will be a lengthy hospital stay. Her big sister is also very excited, and I can tell that she misses having Phoebe at home.  The first thing she says when she wakes in the morning is, "let's go see Phoebe now". 
Tonight and for the past few days and nights, my mind has been on Phoebe and her potential homecoming, but also on another infant Leukemia warrior.  Tyler Burdick.  Tyler passed away today at 4:33pm, while being held and comforted in his mother's arms.  He fought a courageous 28 month battle with Infant Leukemia and died at just 2 and a half years old.  His mother, Stephanie, is someone that I greatly admire for her strength, courage and optimism.  My thoughts and prayers are with her family tonight. Tyler left this world surrounded by so much love, he touched my heart and the hearts and souls of so many others.  There really are no words to express how deeply sorry I am for his family.  My heart is heavy.  

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