On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, November 20, 2011

Rock on Phoebe Rose

Our weekend is coming to an end.  It was fun-filled.  We celebrated Mae's 3rd birthday 5 days early so that Phoebe could take part, I baked cake, and Jon cooked up some delicious meals, we took  long walks, enjoyed a beautiful sun shining day on Saturday, and a rainy day today.  Phoebe tried her best not to nap - she seemed too excited to play with her big sister.  She ate a few cheerios, and took some sips from a sippy cup - not nearly enough to warrant removal of her ng tube, but it's a start.  We finally saw an end to her incredible nausea and vomiting. 

We will miss being a family, doing all of these simple and everyday things, and Mae and Phoebe will miss their playtime.   I am sad for them, but hopeful that Phoebe's transplant will go smoothly and that soon she will be back with us, where she belongs.  I cannot believe that we are already here, about to embark on this huge step towards a cure.  Phoebe Rose really does rock. 

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