On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, January 3, 2013

Happy New Year

Happy new year and welcome 2013. Lucky 2013.

The first good sign this year came with Phoebe staying up late to bring in the new year. She is feeling much better since the onset of her fevers and infection. The bacteria that was found in her urine had spread to her blood, but once antibiotics were started, she began to improve and yesterday her blood appeared clear of bacteria. We are still waiting for her to sit on the potty to test her urine.

We are also still waiting to hear from Philadelphia but moving forward with the plan in the meantime. Phoebe will get another two doses of chemotherapy tomorrow. Her blood work still looks okay, but her platelets, hemoglobin and white blood cell count have been dropping a little more everyday. It is hard to know if this is a result of the chemo she has had, the infection, or her disease, but we are still moving forward and happy that Phoebe continues to be a bundle of energy.

The most recent ultrasound showed a reduction in the size of the mass, which is good news and another step in the right direction.

Every day brings with it progress and for that and so many other things, we are grateful.

Phoebe has only needed one blood transfusion since her relapse, but we know that she will need more as we continue on this path. Please give blood if you can, it is a gift that allows Phoebe and people like her, to continue their fight. You can call 1-888-2-donate to make an appointment to give.

Happy new year! May 2013 be everyone's year.


  1. Phoebe is adorable! Thanks for the reminder to donate blood, I'm going to make an appointment today!

  2. Hi! So happy for you:) are sydney just had clear scans! Chat soon