On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Tuesday, January 29, 2013

Last minute scrambling ...

We are leaving for Memphis tomorrow and in the short almost two days since our flights were booked, it has been a flurry of activity.

Jon and Mae needed passports, which thanks to good friends, a passport office that opened in the very early morning, and our doctor at CHEO for writing a letter explaining our need for urgent travel, they are ready to be picked up later today - after being applied for this morning. Not without a wee bit of stress. This was no small feat.

Thanks to the wonderful folks in the St.Jude travel office, Jon and Mae have been booked on the same flight as Phoebe and I so we will travel together. Some much needed family time will be had.

Mae visited the world's most kind and generous dentist today, who after learning about Phoebe's story, booked Mae very last minute, not once but twice, for dental work and sent us on our way with only her best wishes for Phoebe's recovery, and no bill. She also showered Mae with compliments, love and attention which she soaked up and needed. The world is filled with many, many wonderful people.

Phoebe is still at CHEO and because it is complicated to send her home for one day as she is on IV antibiotics, she will be discharged tomorrow, just in time to head to airport for her plane ride to Memphis.

Mae visited her class today to say good bye to her friends and wonderful teachers, and temporarily, to the school that has been an incredible source of support.

There are events being planned by this wonderful school and community, together with family and friends, in support of Phoebe's journey. One is a garage sale this Saturday from 9-12 in the Manor Park school gym, which comes complete with delicious baked goods and treasures not to be missed.

And so now that the stress of this day is coming to a end, and loose ends have been tied, we are excited to begin the next part of this journey. We are anxious as we have a full day of appointments for Phoebe on Thursday and we will learn more about where this road will take us. We need to believe that it will take us to Phoebe's much deserved and sought after cure.

This day has brought to light, once again, the love and support that we have felt at each step of this journey - the wonderful friends and family that we have in our lives, the nurses and staff at CHEO that have become like family, our new friends and staff at Manor Park that I will miss seeing each day, and the community that has surrounded us with love and lifted us up on even the darkest days.

Thank-you. Each of you who has read and shared Phoebe's story, who has kept her in your thoughts and prayers - your support, kind words, and love means so much. I wish I could individually thank each and every person who has helped us, but until then please know that you have done so much to make this journey easier.

Now on to a new path, or a new but familiar path that with hope will lead us to a cure.

We believe.

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