On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Sunday, January 27, 2013

Never a dull moment ...

Our hopes of returning home on oral antibiotics have been delayed with the news of positive blood cultures. Meaning that there is bacteria in Phoebe's blood as well as her urine. The thought is that when the stent was removed, it "showered" her blood with bacteria, causing fevers and requiring IV and quite strong, antibiotics. We were told that this shouldn't affect our plans to go to Memphis and ironically, Phoebe developed a very similar infection just before her first trip to Memphis. Never a dull moment.

With all of the excitement and roller coaster emotions of Friday's events, I didn't get a chance to really thank the wonderful people of Monkey Rock Music for the show they put on in Phoebe's honour on Thursday. Mae had a fantastic time and danced the night away. She was even invited up on stage to play the ukulele. Phoebe was unable to attend, but has watched the video of her sister playing the ukulele about a hundred times, saying "that's Mae!" over and over again. Thank-you Manor Park and Monkey Rock Music for helping to make this journey that much easier. Seeing the school gymnasium filled with so many people, out to help our family, truly lifted our spirits.

The plan for right now is to continue with IV antibiotics, and hope that the coming days include such things as packing bags, booking flights and preparing our family to travel to Memphis. Perhaps even returning home on antibiotics before beginning our next big adventure. Despite this infection that is considered, very serious, Phoebe is doing well. Still playing the days away in her little room at CHEO.

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