On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, January 16, 2013

Still waiting ...

The doctors in Philadelphia have decided to extend the testing window to 10 days and so we will know on Thursday (hopefully), how Phoebe's cells have grown.

The initial results show that they seem to be a bit slow to start off but slow and steady often wins the race, and so we will wait, and we will hope.

The cell number needs to be at 4 to qualify and right now Phoebe has 1.3.

Phoebe and I share the same t-cells as her last transplant was with my stem cells and I know that in many aspects of life, I am slow and steady. She however, is feisty, energetic and full of spunk, so between the two of us those cells will grow.

I believe they will. I have to because I honestly don't know where we go from here.

Please pray for strong cells.




This is a photo of Phoebe, stringing her necklace of courage beads. This necklace, that we have been making throughout Phoebe's journey, has a bead to commemorate and acknowledge each step. It is almost fifty feet long.

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